|
Internet Resources
Patients can now find hundreds of sites devoted to cancer on the Internet.
Though it is easier to find information about cancer than it was in the past,
searching can still be overwhelming and tedious. Here is a list of websites that
may aid you in your search. Many offer diagnosis and treatment information,
printed educational material, counseling, newsletter, discussion groups,
financial assistance information, and more. This list is provided as an
information aid; it is in no way an endorsement or a recommendation of any
organization or website.
Remember that any information gathered on the Internet should be read with
caution; any questions or concerns you have should be discussed with your
doctor.
General Cancer
Organizations
Cancer Specific
Resources
Breast Cancer
Resources
Colon Cancer
Resources
Head and Neck Cancer
General Cancer Organizations:
American Cancer Society (ACS)
www.cancer.org
Provides numerous resources, including printed materials and counseling
for patients and families. Information on lodging for people who may require
treatment far from home. Comprehensive website on a variety of
cancer-related issues.
American Institute for Cancer Research
www.aicr.org
National cancer charity that focuses on the link between nutrition and
cancer. Provides research and consumer information such as newsletters,
recipes, and other free educational publications.
Association of Cancer Online Resources www.acor.org
A resource for international listings on different types of cancer.
Cancer Care, Inc. www.cancercare.org
Non profit organization that provides counseling, education, and
financial assistance information.
Cancer Hope Network
www.cancerhopenetwork.org
Support group for those undergoing chemotherapy and radiation therapy.
Trained survivor offer one-on-one counseling.
Cancer Information Service (CIS)
www.cancer.gov
A national information and education network that operates a toll-free
service to provide callers with the most recent scientific information.
Information is provided in English and Spanish.
Cancer Survival Toolbox
www.cancersurvivaltoolbox.org
Sponsored by the National Coalition for Cancer Survivorship, this site
presents self-learning audio programs designed to help patients and
caregivers cope with the diagnosis and treatment of cancer.
Cancer 411 www.cancer411.org
Complete listings of all cancer clinical trials available worldwide. The
trials are sortable by cancer type, phase, and location of study.
Cancervive www.cancervive.org
A national network that runs support groups to help with everyday
concerns for cancer survivors. This organization will put you in touch with
the group nearest you or assist you with forming your own group.
Gilda's club Worldwide www.gildasclub.org
Offers emotional and social support as a supplement to medical care.
Coordinates a network of groups, lectures, workshops, and social events.
Lance Armstrong Foundation
www.livestrong.org
Provides information and tools designed to help cancer patients and
caregivers maintain strength and a positive attitude throughout the cancer
journey.
Look Good...Feel Better www.cancer.org
Free program that helps women learn to cope with the appearance- related
side effects associated with cancer treatment. Licensed cosmetologists
instruct women who are currently undergoing chemotherapy and/ or radiation
on how to wear wigs, turbans, scarves and cosmetics (one time per patient).
Pre-registration is required.
National Alliance for Hispanic Health
www.hispanichealth.org
The oldest and largest network of health and human service providers,
servicing over 10 million Hispanic consumers throughout the US since 1973.
National Asian Women's Health Organization (NAWHO)
www.nawho.org
Provides an intervention program whose goals are to improve screening
outreach and cancer education and to eliminate the threat of breast and
cervical cancer in Asian-American nationwide.
National Cancer Institute (NCI) www.cancer.gov
Educational network that provides the latest, most accurate cancer
information and support for healthcare providers, cancer patients, and their
families. Current research studies available for the treatment , prevention,
and early detection of cancer.
National Coalition for Cancer Survivorship (NCCS) www.canceradvocacy.org
A network of groups and individuals promoting national awareness of
issues affecting cancer survivors.
People Living with Cancer American Society of Clinical Oncology
www.peoplelivingwithcancer.org
Cancer information and resources for patients and caregivers. Provides
cancer education, treatments, and coping strategies.
Cancer Specific
Resources:
Bone Marrow Transplants and Stem Cell Transplants
Blood and Marrow Information Network
www.bminfonet.org
Quarterly newsletter, books, attorney referral service,
patient-to-survivor link, resource directory, on-line Transplant Center
Database, and Drug Base.
National Bone Marrow Transplant Link
www.nbmtlink.org
Provides peer support and other information to bone marrow transplant (BMT)
patients and families. Also provides information to prospective BMT patients
and family members.
National Marrow Donor Program (NMDP)
www.marrow.org
Facilitates marrow transplants from unrelated volunteer donors to
patients with leukemia, aplastic anemia, and other potentially
life-threatening diseases.
Breast Cancer
Resources:
Breast Cancer
www.breastcancer.org
Provides generalized, easy to understand information about breast cancer
diagnosis and treatment.
Susan G. Komen Foundation
www.lomen.org
Eradicating breast cancer by advancing research, education, screening and
treatment.
National Lymphedema Network
www.lymphnet.org
Provides education and guidance to lymphedema patients, healthcare
professionals, and the general public.
Sisters Network
www.sistersnetworkins.org
Committed to increasing local and national attention to the devastating
impact that breast cancer has in the African-American community.
Y-ME National Breast Cancer Organization
www.y-me.org
A 24 hour too-free hotline staffed by professional counselors and
volunteers who have had breast cancer. Provides information, education,
support, resource library, wigs and prostheses for breast cancer survivors.
Colon Cancer Resources:
Colon Cancer Alliance
www.ccalliance.org
Organization provides information and support through a network of colon
and rectal cancer survivors, their families, caregivers, people genetically
predisposed to the disease, and the medical community.
Head and Neck Cancer:
Support for People with Oral and Head and Neck Cancer (SPOHNC)
www.spohnc.org
A patient-directed, self help organization dedicated to meeting the needs
of oral and head and neck cancer patients by addressing broad emotional and
humanistic needs.
Hospice:
National Hospice Organization (NHO)
www.nhpco.org or www.hospiceinfo.org
Nonprofit membership organization representing hospice and palliative
care programs and professionals in the US=.S. It is committed to improving
end-of-life care and expanding access to hospice care.
Lung Cancer:
The Lung Cancer Alliance
www.lungcanceralliance.org
An organization dedicated to people living with lung cancer or those at
risk for the disease. Promotes initiatives aimed at educating public policy
leaders to the need for greater resources for research while changing the
face of lung cancer and reducing the stigma associated with the disease.
American Lung Association
www.lungusa.org
Provides information on smoking-cessation groups and literature on lung
disease, and promotes lung health.
Lymphoma and Leukemia
The Leukemia and Lymphoma Society
www.leukemia.org
Provides information, guidance and support to patients for leukemia,
Hodgkin's disease, myeloma, lymphoma, and other blood-related cancers.
Lymphoma Research Foundation
www.lymphoma.org
Provides educational information, physician referrals, and information on
clinical trials.
Multiple Myeloma
International Myeloma Foundation
www.myeloma.org
Offers information and services for the treatment and management of
multiple myeloma.
Multiple Myeloma Research Foundation
www.multiplemyeloma.org
Raises funds for research and provides educational materials to patients
and family members. Excellent information on multiple myeloma in
easy-to-understand language.
Ovarian Cancer:
National Ovarian Cancer Coalition
www.ovarian.org
An organization of ovarian cancer survivors that seeks increased
recognition of the disease by government, media, health officials, and the
medical community.
Prostate Cancer:
The National Prostate Cancer Coalition
www.4npcc.org
A national grassroots advocacy group that raises funds for research and
works with patients, survivors, families, doctors and researchers.
Skin Cancer:
The Skin Cancer Foundation
www.skincancer.org
Offers information on the latest news about skin cancer, its treatment,
and detection.
Financial Resources:
Corporate Angel Network, Inc. (CAN)
www.corporateangelnetwork.org
Provides free transportation(using corporate jets) to or from a hospital
or recognized treatment center in the U.S., without regard to patients'
financial resources, for people with cancer and family members. Travelers
must be ambulatory and self-sufficient. Those who donate blood and bone
marrow for cancer patients may also travel free.
|